As Community and Events Fundraising Manager for the A-T Society I meet many truly inspirational people. Our fundraisers never cease to amaze me with their hard work and dedication, organising incredible events and taking part in all manner of activities, most of which Milorad and I could never do! But it is the families we support who face the daily challenges of living with A-T that have inspired us most. 

2019 is the A-T Society's 30th anniversary, a perfect time to set ourselves a challenge and raise some money to help this small charity continue to make a big impact. We love London and enjoy walking but 25km will be a challenge - our walks are usually much shorter and often have a pub or coffee shop as the destination! 

A-T  or Ataxia Telangiectasia is a rare genetic condition. It is degenerative,  life-limiting and savage. Children born apparently healthy start showing symptoms around the age of two when they start to lose their balance and coordination. By the age ten most need to use a wheelchair and as their friends gain increasing independence during adolescence,  young people with A-T become increasingly reliant upon their parents and carers as their condition continues to deteriorate.       A-T also affect the immune system resulting in frequent chest and lung infections and a high risk of leukaemia and other cancers. The is no cure for  A-T and average life expectancy is just 26. 

The A-T Society offers a unique lifeline to families and funds research to find new treatments and ultimately a cure. Every pound donated in sponsorship will help people with A-T live well and keep Milorad and I motivated as we zig-zag our way from Putney to Southwark Bridge.