As most of you know, Jennifer was diagnosed with CFC Syndrome in February of 2019.  It is a genetic condition that affects every part of her life - development, stature, skin, neurology, behavior, etc. She has made so much progress over the last few years, and we have been very fortunate to connect with the CFC International community.

We are grateful that our journey with CFC syndrome has led us to build a community of the more than 800 amazing families.It's time for our families to join together this summer to share, laugh, learn, and gain hope. By attending the 2022 CFC International Family Medical Conference in Irvine, California this July, we will hear the latest in CFC syndrome treatment, meet with clinical experts, participate in research, and create memories for a lifetime.

For every $250 our family raises, this will pay for our a member of our family to register for this life changing experience. It will also ensure that his experience is amazing for all of the families in our small, but mighty community. CFC International is a charitable organization that provides research, family support and education on CFC syndrome to a global community. Their mission is to improve the quality of life for individuals living with CFC syndrome and their families. Thank you for giving us hope!