Charlotte's page

Charlotte Symes is raising money for Cystinosis Foundation UK
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Paddock Wood Half Marathon 2012 · 1 April 2012 ·

Provide support to anyone diagnosed with cystinosis, as well their families and friends Highlight the disorder to the medical profession and the wider community Support research into the treatment of cystinosis Work with other organisations to understand more about metabolic disorders

Story

Thanks for taking the time to visit my JustGiving page.

I am running a half marathon on 1st April 2012 for my friends beautiful little sister who suffers from a rare condition called Cystinosis.

Cystine is an animo acid everyone needs. Cystinosis occurs when the mechanism which removes excess cystine from cells in the body, breaks down. Cystine then accumulates within every cell, proventing them from functionally properly. This initially leads to kidney problems and progresses to other parts of the body. Impaired growth is another symptom of the condition. With early diagnosis and current treatments it is possible for sufferers to lead a longer, fuller life.

Currently there is no cure for Cystinosis. However the charity I am running for Cystinosis Foundation UK is supporting research that will help in finding a cure and improving the medicines we have to treat Cystinosis.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now. Thank you very much Charlotte xx

Donation summary

Total
£120.00
+ £25.00 Gift Aid
Online
£120.00
Offline
£0.00

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