Charlotte's page

Paddock Wood Half Marathon 2012 · 1 April 2012 ·
Thanks for taking the time to visit my JustGiving page.
I am running a half marathon on 1st April 2012 for my friends beautiful little sister who suffers from a rare condition called Cystinosis.
Cystine is an animo acid everyone needs. Cystinosis occurs when the mechanism which removes excess cystine from cells in the body, breaks down. Cystine then accumulates within every cell, proventing them from functionally properly. This initially leads to kidney problems and progresses to other parts of the body. Impaired growth is another symptom of the condition. With early diagnosis and current treatments it is possible for sufferers to lead a longer, fuller life.
Currently there is no cure for Cystinosis. However the charity I am running for Cystinosis Foundation UK is supporting research that will help in finding a cure and improving the medicines we have to treat Cystinosis.
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So please dig deep and donate now. Thank you very much Charlotte xx
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