Story
LAM is a rare lung disease almost exclusively affecting women.
MISSION ACCOMPLISHED. I started about 9.15 this morning (Sunday 26th April) before the sun and pollen count were too high. We are so lucky to have a garden to exercise in. I enjoyed the smell of the lilac and bluebells and listening to the insects and birds. The highlights were watching a pair of Canada Geese flying over and hearing my first cuckoos this spring.
Thank you to everyone for your encouragement, messages of support and donations. Keep safe and well.
Our thanks to Jo from Mel's Top Cutz for shaving the hair and beard and to everyone who came to see Dave loose his locks.
I (David) would like to raise funds for a charity called LAM ACTION. LAM is the shortened version of Lymphangioleiomyomatosis, a very rare disease mainly affecting the lungs. Almost exclusively a female disease, there are currently about 240 women in the UK diagnosed with LAM. This disease is degenerative, causing excessive growth of smooth muscle cells which progressively destroy lung tissue and erode lung function. Although research is ongoing, there is currently no cure for LAM and effective treatment is limited.
My wife Gabrielle has coughed badly ever since I known her and she was incorrectly diagnosed with asthma some years ago. She has now been recently diagnosed with the rare condition of LAM. Since her diagnosis she has felt very isolated. LAM Action has helped to address this.
LAM ACTION has 2
primary aims;
• To provide information and support for those with LAM and their families
• To educate health professionals about LAM and to advance research into LAM
There are so few women diagnosed with LAM that funding for LAM Action is sporadic. I would like to help and have agreed to do A SPONSORED HEAD SHAVE on FRIDAY 21st SEPTEMBER 2018 and would ask you to donate via JustGiving.
Thank you for your support - Dave
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.