Story
EDS UK provides help and support to those who live with Elhers-Danlos Syndrome and provide information and support to the medical professionals. They are a small charity compared to the big boys so would really benefit from our help. I would also like to raise
awareness as many people who live with this condition show no real outward signs to others and as such find they do not receive the help and understanding they deserve.
Please support me and donate any amount you can to raise money for this charity. It would be great if you could also forward this link to anyone you know who may be interested in sponsoring me and raise awareness of this condition.
Due to this devastating condition Fern will not be there to cheer me on at the finish line, but she will be with us as always, every step of the way.
Ehler Danlos Support UK "making our invisible visible