Story
Exactly one year ago, everything changed when my lung collapsed suddenly whilst heading to the gym. After days with a chest drain with no successful inflation, doctors took a CT and discovered cysts on my lungs. This resulted in a surgery to removed the part of my lung which caused the collapse and to take a biopsy. The biopsy confirmed that I had an extremely rare condition called Lymphangioleiomyomatosis (LAM). The recovery from the operation was steady, and just a year later I am absolutely ecstatic to say thanks to the amazing work of the NHS and all the fantastic support from the LAM clinic and LAM action, I have been able to take up running and resume some normality. I have been given a life long medication to hopefully preserve my lung and kidney function for as long as possible. I am especially grateful to all my family, friends and colleagues during the last year.
Only around 7 in 1 million women are suspected to have this disease, with only around 400 women in the UK. I am sharing my story with you all to try and show you what fantastic work very small charities are doing, and try to raise awareness for LAM action during these very difficult times. There is currently no cure for LAM, and this charity is helping to provide funds for vital research to help find a cure, treatments and to support patients and families with this progressive disease. http://lamaction.org/
Myself and Adam will be running 2.6 miles to support the 2.6 challenge on Sunday 26th April, which would of been the day of the London marathon, this would usually raise millions of pounds for charities.
Please give what you can to small charities who may be struggling at this difficult time. Thank you.