Thanks for taking the time to visit Jack's JustGiving page.

On 25th February 2016 we started our IVF journey. On March 30th 2016 they were able to collect 14 eggs. Out of 14 eggs, only 1 fertilised.  On April 1st, we had our one survivor put back.

On 9th April we found out we were expecting! Baby Gill was due 20th December. We were over the moon!!

Everything was perfect and we found out in early July we were expecting a little boy. Jack Ethan Gill.

At our 20 week scan on August 9th, our world fell apart. After they scanned Ashleigh for over an hour, we were informed that there was abnormalities with Jack's head, skull, heart and spine.  We were transferred to John Radcliffe Fetal Medicine Unit, one of four super departments in the UK that specialise in fetal abnormalities.

After meeting with Christos our consultant our fears were confirmed, MKUH were right. We chose to have some of Jack's amniotic fluid taken so they could test this over a period of 2 weeks to detect any chromosome abnormalities. 2 weeks later we got the all clear.

As we got the all clear we decided to go on our planned holiday the next day. 2 weeks later, whilst on holiday, we received the call the genetics wanted to see us ASAP.

At our meeting with the genetics on 9th September we was informed of a diagnosis. Jack had Pfeiffer syndrome. Its extremely rare, only 1 in 100,000 people are diagnosed and Jack's was the most severe end of the scale. If we continued with the pregnancy, he would be a very poorly little boy that would need a number of major operations involving his skull and face. They were unsure on his ability to breathe, feed and intellectual ability.

After a lot of discussions since our first meeting in August, we agreed we couldn't and wouldn't let our boy suffer and we made the toughest, most heartbreaking decision to terminate the pregnancy. On 15th September, Jack passed away at John Radcliffe.

Jack was born at Milton Keynes University Hospital on 17th September at 21:20 weighing 2lb 3oz. 

We have chosen to not receive flowers or cards. We would much rather a donation was made in Jack's memory to Headlines. Headlines supports families with information and support for all of the craino issues that comes with Pfeiffer syndrome along with other syndromes linked with skull abnormalities.

Thank you for your support.

Scot, Ashleigh and Jack 

xxx