Welcome! 

I’m raising money for The-Charcot-Marie-Tooth UK Charity, by running 100 miles in February 2021. 

This charity is very personal to me and my family, who have suffered from this neurological genetic disease over generations. Witnessing the degenerative effects it carries later in life, has inspired me to raise awareness of this little known disease. 

CMT predominately affects the hands, arms and feet of the individual. Main symptoms range from muscle wastage effecting walking and hand strength to uncontrollable tremors, abnormal curvature of the spine and problems with speaking, breathing and swallowing. 

Only receiving a family diagnosis 12 years ago has brought to light as to why my mum required a double knee stabilisation at the age of 15, why my grandad and uncle struggle to walk and grip everyday items like cutlery. Luckily, my diagnosis came early in life and I was able to undergo pioneering surgery at The Great Ormond Street Hospital at the age of 16, aimed at preventing my feet from suffering from the lasting effects of CMT. 10 years later, the operation seems to have eased the pain I previously experienced however still not eradicating the symptoms of CMT. Highlighting the importance of diagnosing and managing this unpredictable disease early. 

I appreciate that we are in a pandemic and money may be tight therefore anything you can spare for this charity would be greatly appreciated by the estimated 23,000 sufferers in the UK.  Donations will go towards research to manage/support and hopefully in the future, prevent this disease from being passed through generations. 

Thanks in advance, Jed