Jessica's on going fundraising

Jessica Johnson is raising money for Ehlers-Danlos Support UK
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On going · 10 June 2014

Ehlers-Danlos Support UK improves quality of life for people living with the Ehlers-Danlos syndromes (EDS). We work across the UK to support, advise and inform those living with the condition and the medical professionals working with them.

Story

Thanks for taking the time to visit my JustGiving page.

My name is Jessica I am 9 years old and suffer from a condition called EDS - Ehlers Danlos Syndrome. There is no cure for my condition it is caused by faulty collagen in the body and as collagen is throughout the whole off our body it can affect any part of my body or organs at anytime. Currently I suffer constant pain throughout my body, dislocate my joints, have a curve in my back so wear a permanent spinal brace and my stomach has stopped working properly so I am fed overnight through a mic-key tube in my stomach. I also have poorly functioning lungs. I would be grateful if you could help me raise as much money as possible for this charity so they can continue the work they do into research and supporting people like me who suffer with the condition.


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Donation summary

Total
£8,377.00
+ £183.00 Gift Aid
Online
£8,377.00
Offline
£0.00

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