Help the Sturge-Weber Foundation continue to improve the quality of life for patients and families as well as continue vital research on Sturge-Weber Syndrome and related Port Wine Birthmark conditions!
Story
Our son/grandson/nephew/cousin Jayden has Sturge-Weber Syndrome, a rare disorder with many complications, including seizures, cortical blindness, and a facial birthmark. We're raising money to help fund research for a cure to help put a smile on our little Jayden's sweet face!
Help the Sturge-Weber Foundation continue to improve the quality of life for patients and families as well as continue vital research on Sturge-Weber Syndrome and related Port Wine Birthmark conditions!
We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.