Our eldest son Sam suffers from Morquio Syndrome, a type of MPS. It causes shortness in stature, progressive physical disability and is life limiting. 

We could not survive without the MPS Society. They provide invaluable support to us and other families living with these rare, devastating conditions. In the fight for the NHS to fund treatment for Morquio, the MPS Society were pivotal and unrelenting in their commitment to ensure children like Sam could access the treatment they so need and deserve.

Please support us and donate to this amazing cause. None of us have ever run a marathon before so we are slightly daunted but training hard!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.