Lisa Hurton

Lisa' Robbie & Kierans Climbing Ben Nevis for INFACT page

Fundraising for INFACT
Β£488
raised of Β£500 target
by 40 supporters
Donations cannot currently be made to this page
Participants: Robbie Hurton and Kieran Hurton
INFACT

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RCN 1162441
We raise funds to support research to improve support for children & families

Story

Thanks for taking the time to visit my JustGiving page.

As all of you are aware this is something very close to our hearts. As stated this charity receives NO backing from government or pharmaceutical companies and the families do this ourselves raising awareness and making changes in the health service so that families have an informed choice of the risks of valproate and other anti convulsant medication. 

Our son Kieran is one of those babies and we as many thousands of families are still fighting to get justice for our children and won't give up.  We need help to continue to do this so please donate and help us stop this from happening and help us to fight for the justice for all the babies, Angel babies and families they all rightfully deserve πŸ’œπŸ’œπŸ’œπŸ’œ #valproarecrisis #valproatevictims . 

Climbing this mountain is going to be a major challenge but we as a family are going to try our damned hardest we can do this! πŸ’ͺπŸ’ͺπŸ’ͺπŸ‘πŸ‘πŸ‘πŸ‘ŠπŸ‘ŠπŸ‘Š

About the charity

INFACT

Verified by JustGiving

RCN 1162441
INFACT are a registered Charity in the UK representing children and their families that have been born with cognitive and physical disabilities caused by anti convulsant medicines whilst taken in Pregnancy such as Sodium Valproate. These disabilities come under umbrella terms of Fetal Valproate Spectrum Disorder and Fetal Anti Convulsant Syndrome. Currently there is very limited help or recognition for these syndromes, and one of the main aims of our charity INFACT is to directly address this problem by Campaigning for full redress and support for affected people. Our work consists of : Raising awareness of FVSD & FACS within Parliament and keeping it on the Political Agenda Working with Governing Bodies such as Medicines Healthcare Regulatory Agency, Department of Health, World Health Organisation , NICE and other organisations ensuring prescribing information of Epilepsy medicines is as up to date as can be Advocating and helping parents apply for EHCP so children have the correct support in schools & colleges

Donation summary

Total raised
Β£487.50
Online donations
Β£487.50
Offline donations
Β£0.00

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