My daughter, Emi (Emily Bell)  was diagnosed with TSA in 2012 at just 4 months old! 

The Tuberous Sclerosis Association (TSA) is the only UK charity dedicated to supporting people affected by Tuberous Sclerosis Complex (TSC). TSC is a genetic condition that can lead to growths in various organs of the body, but those most commonly affected are the brain, eyes, heart, kidney, skin and lungs. When they cause problems it is mainly because of their size and where they are in the body. By supporting me with a vital donation you can be a part of the TSA’s life-changing work....

In order to raise as much as possible I am running a minimum of three miles every day, and a full marathon every month in 2023!