I'm Tarun , but my family call me super boy, as I have come so far and never give up. I have been fighting to stay all my life and will carry on as my family and friends are all amazing and help me to live as much as a normal life as I can.

Born at 32 weeks with my twin brother , Kian my twin brother is fine. But myself and my mummy have spent most of my life in hospital. As I have noonans syndrome. This effects everything ,I have had so many operations I can't keep up, having to deal with leukaemia and heart ops and not being able to eat or drink anything ,. I was told I would never walk or talk and that I would probably not make my 1st birthday .i am 7 now , but it is still hard for me as I am on two pumps 22 hours a day and have to have a emptying bag on my stomach as it does not empty its self. They have just found out that I all so have cerebral palsy . I still spend a lot of time in hospital as we can't pump as much food into me as I need , so I can get very dehydrated and this causes lots of problems as my bowels don't work as well . I can walk but not to well due to my muscles being so tight and my stomach hurts most of the time. Also where I'm so little I can't carry two pumps around with me. But I can get about very well in my super man wheelchair.

I am blessed with a loving family , Tia is my older sister she helps me a lot and Kian runs away with my toys a lot so mummy buys two of everything so I don't get to upset . My grandad and grandma are the best they try and help my mummy out by looking after my brother and sister when I'm in hospital. 

Next year I will be have a long stay in hospital as they need to take a look at everything that is going on. Just to see if they can do anything else to help me. I am all so having my leg done to help me walk. Fingers crossed  

Sending love 

Super boy Tarun xx