As most people will now know, I was diagnosed with a neurological condition called Charcot Marie Tooth disease when I was 31. My daughter Sienna was also diagnosed a couple of years later at the age of 2. There is no cure for this disease.

The condition can make the simplest of daily tasks like walking, buttoning a shirt and brushing your teeth really difficult. It comes with a lot of pain and severe fatigue which can mean that  it can mentally get a grip of people and drag them down. 

One of the things that keeps me positive is watching Sienna just deal with this head-on. She’s been at school almost 2 years now and comes home most days with new cuts and bruises because she’s fallen. She’s visibly exhausted and severely fatigued but refuses to acknowledge it.

This Ironman is an extension of my mission to show Sienna, her sisters and anyone else with this condition that there are no limits and that they should never ever give up no matter what. 

I am now on the board of Directors for a brilliant charity called CMT UK which seeks to help those with the condition by providing support and funding research projects to find a cure one day.

If you can spare even a penny it will go a long way to get me through this challenge and will help the charity to keep doing the great work it does.

Details of the Ironman are here: https://www.ironman.com/im703-staffordshire

Thank you