Sohana is a young girl who was born with the condition Recessive Dystrophic Epidermolysis Bullosa (RDEB) which makes her skin extremely sensitive. Kids with RDEB are fragile to an extent that they are sometimes called "butterfly children." Lots of activities that we take for granted as easy routines in our daily lives are a struggle for them. Can you imagine a day where your dressing up takes up to two hours and eating and drinking cause blisters in your mouths and throats? These kids have to live with this every single day. 

Sohana's amazing parents have founded Sohana Research Fund to raise awareness and funds for research to find a cure for this awful disease. I am hoping you will donate to help Sohana and all "butterfly kids" to beat EB! There is no small gift, every dollar counts! 

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.