Zoe Mead

David Lloyd Birmingham - Knights of Sufferlandria page

Fundraising for Niemann-Pick UK
£1,814
raised of £500 target
by 70 supporters
Donations cannot currently be made to this page
Participants: Luke, Stephen, Nick, Richard, Gail, Jenny, Donna, Andrew, Neelam, Alex, Maria
Niemann-Pick UK

Verified by JustGiving

RCN 1144406
We support people living with Niemann-Pick to improve & enhance their quality of life

Story

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David Lloyd Birmingham are entering a team to take on one of the biggest indoor cycling challenges. Knights of Sufferlandria.

We will be riding 10 Sufferfest films back to back with only a 10  min break in between each film. That's a whopping 10 hours of cycling!

We have chosen Niemann Pick as our  charity- to raise funds to support families and also put to vital research into this rare genetic disorder that currently has no cure.

Zoe - Group Exercise Co-ordinator at David Lloyd Birmingham, has a personal connection to the charity, as her daughter Louise tragically died from Niemann Pick Type A when she was just 3 years old.

NPDGUK were a great support to Zoe and her family, offering help and advice at a very difficult time. The charity offer a support line for families, as well as funding specialist posts such as a clinical nurse who will work alongside families to get them access to the local services and support that they need. The charity also run annual events for families to come together and share their experiences and learn about vital updates in research, which money raised by NPDGUK help to fund.

Niemann-Pick diseases are a group of rare inherited lysosomal storage disorders that can affect both children and adults. There are 3 types A,B and C. There is currently no cure and the conditions are life limiting.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

About the charity

Niemann-Pick UK

Verified by JustGiving

RCN 1144406
NPUK is dedicated to making a positive difference to the lives of people affected by Niemann-Pick diseases and their families. Our vision is a world where those affected can meaningfully participate in society, reach their full potential and achieve the best possible quality of life.

Donation summary

Total raised
£1,814.00
+ £304.75 Gift Aid
Online donations
£1,814.00
Offline donations
£0.00

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