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The 1p36 Family Trust is a registered charity devoted to supporting children and adults affected by 1P36 Deletion Syndrome and their families in the UK, by arranging conferences to share research and best practises concerning management of symptoms, treatment and also sharing educational content about 1P36 Deletion Syndrome.
This is our 2nd London Landmarks Half Marathon raising funds for our small charity. Our family fun days are free events for the 1p36 families to attend, it's an amazing opportunity for families from all over the UK to connect. We can't wait to have another fantastic event in 2026.
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