£7,074.50

raised by 18 supporters
Royal Free Charity

Amyloidosis Research Fund

Amyloidosis is a rare, often fatal disease, caused by accumulation of protein fibres, amyloid, in the tissues. The Fund provides invaluable support for research and patients in the National Amyloidosis Centre at the Royal Free Hospital.
Charity Registration No: 1165672

Be a fundraiser

Create your own fundraising page and help support this cause

Story

The National Amyloidosis Centre (NAC) team has made fundamental discoveries about amyloidosis over more than 40 years and the NAC has been NHS funded since 1999 to provide diagnostic and management advisory services for all UK amyloidosis patients. We have devised and implemented new methods for diagnosis and treatment, leading to much improved outcomes for many patients. We have the largest, most diverse, patient cohort of any specialist amyloidosis centre in the world, with 5,000 patient visits each year for unequalled, state of the art, specialist investigations. The charitable Amyloidosis Research Fund within the Royal Free Charity provides invaluable support for our world leading research, our development of new treatments and delivery of key tests that are not available elsewhere.

The patients, families and carers are uniquely supported by the NAC Amyloidosis Awareness Programme. It includes the comprehensive patient information website, www.amyloidosis.org.uk; an expertly moderated online patient forum; patient information leaflets about all aspects of amyloidosis effects and treatments; newsletters about the NAC and its patients; and our Patient and Public Involvement (PPI) function. The UK Amyloidosis Advisory Group, UKAAG, comprising senior amyloidosis physicians and amyloidosis patients, ensures full Patient and Public Involvement with research and clinical care in the Centre.

Be a fundraiser

Create your own fundraising page and help support this cause

Photos

0

Fundraisers

17

user

Jesal Patel

£1,243.00

raised by 43 supporters

0%
user

Robert Pilkington

£1,070.00

raised by 29 supporters

0%
user

Simon McCullagh

£1,011.00

raised by 26 supporters

user

Williams (and Fillery!) Clan

£915.00

raised by 20 supporters

0%
user

Neil Fuller

£810.00

raised by 18 supporters

0%
Supporters

1

user

Sallie Penwill

16 days ago

For My Beautiful Nonny ??xxxx

£20.00

+ £5 Gift Aid

About the charity

Royal Free Charity
Royal Free Charity

The Royal Free Charity supports Royal Free London patients (incl.The Royal Free, Barnet and Chase Farm Hospitals) Support is through trained volunteers, additional equipment, improved environments and patient based research. Fundraising pages can support a specific hospital or department.

Charity Registration No: 1165672

http://royalfreecharity.org

Donation summary

Total raised

£7,074.50

+ £1,448.38 Gift Aid

Direct Donations

£20.00

Donations via Fundraisers

£7,054.50

Offline donations

£0.00
Charities pay a small fee for our service. Find out how much it is and what we do for it.

Amyloidosis Research Fund

Royal Free Charity