£165

raised by 5 supporters
The Haemophilia Society

Christmas Appeal 2019

Your generous donations will help us develop our Talking Red Campaign. You will help us to raise awareness of bleeding disorders in women, support our work campaigning to help more women recognise they may have a bleeding disorder as well as support.
Charity Registration No: 288260 (England & Wales), SC039732 (Scotland)

Be a fundraiser

Create your own fundraising page and help support this cause

Story

Can you imagine what its like missing school days because you have bled out in the classroom and despite having a wonderful best friend who lent you her coat to cover up, everybody noticed. But you dont bleed out when you have haemophilia or von Willebrands, do you? Its a myth about fountains of blood spurting and people losing blood from cuts.

No youre right, its not really a thing unless youre a woman with a bleeding disorder that is, and then simple everyday life can mean that you go prepared with a kit bag of sanitary products just in case.

Now, this is supposed to be a cheerful Christmas appeal to help raise money to support our work, but the reality of what #OurCommunity goes through, especially women, was felt to be too important to skip over. Womens bleeding disorders in particular can have a huge impact mentally, physically and financially. Yet many people still dont know that women can be affected by bleeding disorders. Recent figures from the UKHCDO suggest that actually there are more women now in the UK with a genetic bleeding disorder, then men.

Lets get Talking Red

Several years ago, we re-established our womens project as Talking Red to get everyone men and women to talk about womens bleeding to empower women, share knowledge and dispel myths. Through Talking Red, we have started to reach and support women who never knew they had a bleeding disorder. They always thought something was wrong, from odd bruising, to very heavy periods, to extended bleeding after dentists visits.

Gentleman, if you made it this far, we thank you the ladies in our lives and our community are precious to us, just as you all are. Our wives, mums, girlfriends, partners, bosses, aunties, daughters they are there when we need them. They may be a carrier, have mild haemophilia or type 3 VWD, but they go through similar issues if not worse than the guys do, and so Talking Red is getting a reboot.

Next year, to coincide with International Womens Day, our Talking Red awareness week takes place from 8 March 2020, finishing with our one-day free conference on 14 March in York which is open to all women affected by a bleeding disorder. Its time for us to talk more about the realities of life for many of our community, and in that respect its time to talk about period poverty as well.

Its a big issue for women like Macey, 18, who live with a bleeding disorder, but live on a fixed income. She dropped out of doing her A levels, and lives in fear of not having enough money to pay for tampons each month.

Can you help?

Please help us to raise awareness about womens bleeding disorders this Christmas could you make a small (or big) donation to our Christmas Talking Red appeal? Together with you we can improve the quality of womens lives through promoting a better understanding of bleeding disorders and bring to an end the stigma of discussing womens bleeding disorders.

Photos

2

No fundraisers yet

Start fundraising to get the campaign going

 
 
 
Supporters

5

John & Barbara Heslop

2 days ago

£20.00

+ £5 Gift Aid

user

Gill Lowe

2 days ago

Great initiative!

£20.00

+ £5 Gift Aid

Anonymous

4 days ago

In support of your work with women.

£100.00

+ £25 Gift Aid

Anonymous

4 days ago

Debra Bowman

9 days ago

£5.00

+ £1.25 Gift Aid

About the charity

The Haemophilia Society
The Haemophilia Society

Haemophilia and related disorders affect around 15,000 people in the UK and occur in all racial groups; while von Willebrand's affects up to 1% of the total population, many of whom are currently undiagnosed. The charity aims to ensure that affected people and their families receive the best possible treatment, care and support.

Charity Registration No: 288260 (England & Wales), SC039732 (Scotland)

http://www.haemophilia.org.uk

Donation summary

Total raised

£165.00

+ £41.25 Gift Aid

Direct Donations

£165.00

Donations via Fundraisers

£0.00

Offline donations

£0.00
Charities pay a small fee for our service. Find out how much it is and what we do for it.

Christmas Appeal 2019

The Haemophilia Society