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Beat SCAD

The Alice Project to beat SCAD

Spontaneous Coronary Artery Dissection (SCAD) is causing healthy people to suffer a sudden heart attack or cardiac arrest and doctors do not know why. Beat SCAD are funding research to find answers and save lives.
Closes on 10/31/2019
Charity Registration No: 1164066

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Story

SCAD is an uncommon heart condition that cannot currently be predicted or prevented and is underdiagnosed due to a lack of awareness. People affected by SCAD often fail to act on their symptoms because they dont suspect it could be their heart when they are fit and healthy. Doctors misdiagnose or diagnose late, which can lead to severe heart damage or heart failure in some cases.

The true incidence of SCAD is unknown but recent statistics indicate:

* Cases reported across a wide age range (18 to 84 years) but most cases occur in young- to middle-aged women

* Mostly aged between 44 to 53 years

* Up to 90% of cases in women

* 10% of cases in women occur during or soon after pregnancy (P-SCAD) BUT 50% of all post-partum coronary (heart) events are due to SCAD

* An exercise trigger is associated with some cases and is more common in men

* Some SCAD patients have connective tissue disorders which may be associated

* SCAD can strike more than once with recurrence reported in approximately 10% of cases at 3-year follow-up

Read patient stories here: http://beatscad.org.uk/scad-stories/

* Carole tragically did not survive when SCAD struck, leaving her family devastated.

* James was shocked to be told he had a heart attack aged 44 when he didnt have any of the usual risk factors.

* Debbie thought her nagging jaw pain required dentist attention but the crushing chest pain that followed made her think it could be a heart attack, however paramedics thought she was having a panic attack.

* Victoria was 35 when SCAD caused her to have a heart attack 8 weeks after delivering her second child.

* Charlotte has had two SCAD events, 5 years apart.

Why are healthy people having sudden heart attacks?

Research is under way in Leicester at the Glenfield Hospital & NIHR Biomedical Research Centre to find answers to why SCAD happens and how best to treat it.

The research began in 2013 after patients located around the UK met via online forum and demanded answers. Over 600 SCAD patients have registered to participate - a staggering number considering SCAD was considered to be extremely rare just a few years ago.

Important research findings have already been reported including the identification of a genetic risk factor, which has opened up further research into the link between SCAD and Fibromuscular Dysplasia (FMD), which is a non-inflammatory disorder of the blood vessels. Imaging data is also revealing clues about the mechanism of SCAD, which is helping to direct the next stages of research.

In 2017, Beat SCAD donated £25,000 to part fund a dedicated Clinical Research Fellow, and Dr Alice Wood joined the team to embark on a three-year PhD with a focus on studying important sub-groups including men with SCAD, those who have experienced more than one SCAD event and P-SCAD cases. In 2018, Beat SCAD donated a further £50,000 to continue funding the work of Dr Wood.

Beat SCAD are now working to raise £64,000 for the Alice Project to fund an additional year of research by Dr Wood. Numerous events hosted by the charity plus challenges completed by our amazing supporters will make this goal possible.

On Saturday 14th September, Beat SCAD are hosting a walk where SCAD patients, their families and friends will come together to further the Beat SCAD mission to:

* Raise AWARENESS

* Provide SUPPORT

* Fund RESEARCH

Beat SCAD are aiming to raise £16,000 from the walk. This will deliver one quarter of the Alice Project total. Please donate to help us reach our goal. Thank you!

We MUST find out why SCAD happens!

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About the charity

Beat SCAD
Beat SCAD

Beat SCAD is a patient-led charity dedicated to raising awareness of the under-diagnosed heart condition Spontaneous Coronary Artery Dissection (SCAD), supporting people affected by SCAD, and raising funds for research.

Charity Registration No: 1164066

http://beatscad.org.uk/

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The Alice Project to beat SCAD

Beat SCAD