In 2021, when our son Bruce was 5, he was diagnosed with Duchenne muscular dystrophy (DMD). Well never forget the moment that we were given the news, when all of our lives changed. To say that we were devastated is a huge understatement it felt as though our world had fallen apart. We had never heard of DMD, and over the following few months we effectively had a crash course in genetic science to try to fully understand Bruces diagnosis and what it would mean for his future.

Bruce was, and still is, a happy, funny, clever, active, stroppy, determined, caring and kind boy and it seemed for a while that Duchenne was going to take all of that away from him. But over the last couple of years we have found that he can absolutely still do all the things that he wants to do, and that we want him to do, but as he gets older and less physically able, those things might look a bit different.

We have set up Bruces Battle Squad with the hope that the funds we raise can help Duchenne UK fund life changing research and treatments that will one day result in a cure for Duchenne.

Thank you for reading our story and for your support.

Kate, Jim, Bruce, Jude and Kit x