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Save the date – Cure EB’s Butterfly Run is a celebration of inclusivity taking place at the Queen Elizabeth Olympic Park in London on Sunday 29th September 2024.
We want to encourage as many people of all abilities to run, walk, wheel, or whatever you can do to complete a 1k, 5k or 10k race.
Join our campaign to help all butterfly children fly free - donate or create your own fundraising page today. It's time to fly!
To make the most of your fundraising, check out these top tips from JustGiving.
Why Butterfly Run?
Cure EB funds medical research to find a cure for epidermolysis bullosa (EB), a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as 'Butterfly Children' as their skin is said to be as 'fragile as a butterfly's wings'.
What we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop.
To find out more about us and the research we fund, visit www.cure-eb.org