Organised by Cure CLCN4🏃♂️💨 This October, witness determination and solidarity as Luca and Max tackle the Venice Marathon on October 27th, challenging themselves not just for sport, but for a deeply personal cause—raising funds for Cure CLCN4.
Cure CLCN4 is a charity dedicated to advancing scientific and medical research on CLCN4-related condition, a rare genetic condition that causes epilepsy, intellectual disability, and behavioural and movement disorders, among other symptoms. Having a loved one with this condition can be life-changing. Yet, despite its impact, CLCN4-related condition remains under-researched and underfunded.
For Luca, this cause is deeply personal, as his younger sister, Daphne, lives with CLCN4. Inspired by Daphne’s resilience, Luca has been propelled to make a real difference—not just for her, but for everyone living with this rare genetic condition. By focusing all donations directly on research, Cure CLCN4 ensures that 100% of your contributions go towards scientific advancements.
To learn more about Cure CLCN4, our mission and achievements please visit: https://cureclcn4.org/
Luca has been a beacon of hope in our community, tirelessly pushing his limits for this cause. From conquering triathlons to marathons, he has raised over £16,000 through his athletic endeavours, including the Ibiza Marathon just this April!
Max, inspired by Luca’s commitment, joins him this year, ready to contribute to this journey.
Join us in supporting Luca and Max by donating. Every pound you contribute pushes us further towards research breakthroughs. Plus, sharing this cause within your networks amplifies our voice and our impact.
Charities pay a small fee for our service. Learn more about fees
