My beautiful son Ilhan was diagnosed in may 2013, with refectory desmoid tumour/fibrosarcoma in his head and neck.

Over the course of 5 years he has received subsatanional amounts of chemotherapy, 4 different regimes, had maximum proton beam radiation, he has being left with a lot of side effects mainly due too the location of his tumours , he has a tracheostomy for breathing and has a peg tube for feeding and medicines!

Whilst on treatment in June 18 Ilhan had a relapse, this came on all of a sudden in the space of 5 days he went down hill, after a scan Ilhan was immediately placed on a very intense 96 hour regimen of chemotherphy at that time, we were told as a family that it was unlikely Ilhan would recover, that any treatment was too bide us time too make memories, this chemotherapy made Ilhan really unwell but a miracle after a 2nd cycle and a week at home too start the 3rd, my beautiful boy started talking and it only got better by the end of the 4th round Ilhan was back too his old self, this is the tricky part is ilhans heart fuction was getting low, so we all agreed too switch too a new drug, PAZOPANIB this is a targeted therapy chemo and works by blocking receptors, ilhans tumour is TKI POSITIVE, Leeds childrens oncology have kindly funded 3months, on the agreement of funding being given by nhs England!! Right now after 4 REJECTED appeals we are left with no option other than too SELFFUND, without this Chemotherphy it is certian that ilhan will relapse , and be placed on pallative care , WE HAVE NO BACK UP OPTIONS OF IV CHEMOTHERPHY OR RAIDATION! This chemotherphy costs around 800 pounds per month!! Please help my beautiful boy we need too raise funds for another 21 months of chemotherphy £16,800, any amount will help!

I am awaiting a letter from ilhans consultant In regards too monthly costing which I will add too the go fund me when received!!

Any money over the amount raised will be donated back too the charitys that have supported us over the years!!

Terms of donations - 100% of cash donations to this cause are held as restricted funds for this campaign, and held in a bank account named after the child. All funds will be held for this cause until they use the funds for the intended purpose, or funds are no longer needed. Any unused funds will go to support other children