My beautiful son Ilhan was diagnosed in may 2013, with refectory desmoid tumour/fibrosarcoma in his head and neck. Over the course of 5 years he has received substantial amounts of chemotherapy, 4 different regimes, had maximum proton beam radiation, he has being left with a lot of side effects mainly due too the location of his tumours , he has a tracheotomy for breathing and has a peg tube for feeding and medicines! Whilst on treatment in June 18 Ilhan had a relapse, this came on all of a sudden in the space of 5 days he went down hill, after a scan Ilhan was immediately placed on a very intense 96 hour regimen of chemotherapy at that time, we were told as a family that it was unlikely Ilhan would recover, that any treatment was too bide us time too make memories, this chemotherapy made Ilhan really unwell but a miracle after a 2nd cycle and a week at home too start the 3rd, my beautiful boy started talking and it only got better by the end of the 4th round Ilhan was back too his