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Closed 28/02/2023

Walk or run 50 miles in January 2023 for Intractable Epilepsy

Join Team Intractable by walking or running 50 miles in January. A great way to get fit in the new year whilst raising funds for an amazing cause. 600,000 people in the uk suffer from epilepsy and 33% of cases are drug resistant (intractable)

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Closed 28/02/2023

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Intractable Epilepsy CharityVerified by JustGiving
RCN 1199192
The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. Many of these children and young adults suffer hundreds of devastating seizures every day. Nearly all have exhausted the traditional pharmaceutical anti-epileptic drugs. Medicinal cannabis is the only medicine that helps. Medicinal cannabis has been legal in the UK since 2018, but access on the NHS remains blocked. So the families have to cope with the immense strain of fundraising up to £2,000 a month to access it privately and deal with the daily care of their sick children. Imagine if this was your child. Please help us to help them. Your donations will support the families to continue getting the medicine they so desperately need.

Story

Intractable Epilepsy help children and young adults with intractable forms of epilepsy. There is an estimated 30,000 people in the UK, who do not respond to routine treatments that help control seizures.

Some hold private prescriptions for medicinal cannabis which massively reduces their seizures and was legalised for medical use in 2018. Like six year old Oliver who we recently helped maintain continued access to his prescription over Christmas. Ground Breaking charity steps in to help six year old child

Medicinal cannabis is sometimes the only medication that reduces, and for some it completely stops, seizures. It is not yet routinely prescribed by the NHS so families have to find up to £2,500 per month for these medications to be prescribed privately. This has become increasingly difficult if not impossible in the current cost of living crisis.

You can help this January by walking or running 50 miles whilst helping raise funds for an awesome ground breaking charity. You could get the whole family involved and spend some quality time walking together, or get all your friends involved as a group, or just get out alone for some you time, to raise your fitness after Christmas and New Year.

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Donation summary

Total
£1,187.36
Online
£1,187.36
Offline
£0.00
Direct
£15.00
Fundraisers
£1,172.36

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