Every year our charity relies on the amazing efforts of people who give up their free time to make a difference to others.

This isn't just the trustees and other volunteers who support them - it's also our amazing event runners who spend time and effort with their sponsorships and fundraising ideas, and all that getting into shape through the winter months to be ready for the big day.

A massive "Thank you!" to you all, whether you're on the scene, behind the scene, or supporting the scene. Every little bit we all do is a step towards better awareness, referral, diagnosis, treatment and support for people who have Stickler Syndrome as part of their lives.