We are fundraising for Neve, a brave and beautiful 10-year-old who has battled Dravet Syndrome since she was 4 months old. Dravet Syndrome is a catastrophic epilepsy disorder that means Neve has had literally thousands of seizures, and her condition affects every aspect of her life. She is autistic, cognitively and developmentally delayed, and has difficulties with both her gross and fine motor skills. Her seizures are life-threatening, and there is no cure.

Her family works tirelessly to ensure that Neve has the best life possible, and Neve participates in a number of therapies to help her physical, emotional, and cognitive development. These therapies cost over £3,000 a year.

Funds raised for Neve will help pay for:

- Weekly special needs yoga, music therapy, special needs gym, and hopefully hydrotherapy in 2019.

- Fortnightly special needs dance and cranial osteopathy.

- Riding for the Disabled (April-October) when the weather is warm enough, as the cold can trigger seizures.

- 2-4 reviews per year with a physiotherapist and occupational therapist to evaluate progress and identify any loss of skills or deterioration due to the progressive nature of Dravet Syndrome.

Neve really is such a special little girl. She smiles, giggles, and brings her family so much joy. She battles her condition with incredible bravery, and your donation will be hugely beneficial to her and her family.

Tree of Hope is a charity that enables families to fundraise through JustGiving and receive Gift Aid. 7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover its core operating costs.

If we raise insufficient funds or surplus funds, they will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objectives. If, in those circumstances, we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to the general charitable purposes of Tree of Hope.