On November 14th 2021 at 7:35pm our beautiful baby girl Phoebe Grace Poole was born.

As many babies Phoebe seemed like a healthy child but as the months went on, we realised Phoebe wasn’t developing as quickly as other children we knew.

We started to notice changes in Phoebe, like getting nystagmus, not being able to support her own weight when sitting down and losing weight.

After being advised to go to A&E and after a few observations she was omitted, Phoebe was only 10 months old. After spending a week in hospital with countless tests and a visit to a metabolic team at guys and St Thomas in London Phoebe was diagnosed with Leighs syndrome.

Phoebe was always a happy smiley baby she had the most beautiful smile, but after her first birthday around Christmas time Phoebe started to deteriorate a lot and eventually lost her ability to smile, laugh and even cry which was heart breaking.

Despite everything Phoebe went through she was so brave and strong, and she brought so much joy to everyone she met.

After 9 excruciating months Phoebe lost her battle with mitochondrial disease and sadly passed away in our arms on 2nd May 2023.

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