We did it!

Our campaign is now complete. 132 supporters helped us raise £9,099.00

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Closed 30/06/2024

Run4CureCLCN4

Organised by Cure CLCN4

This year, Luca and Marco are lacing up their running shoes to tackle the 2024 Ibiza Marathon on 13th April, all while raising funds to support scientific research on CLCN4-related condition. Show you support and let's make every kilometer count!

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Closed 30/06/2024

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The campaign has now expired but it's not too late to support this charity.

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We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4, a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders, and microcephaly.

Story

About Cure CLCN4

Cure CLCN4 is a UK-registered charity that aims to move scientific and clinical research on CLCN4-related condition forward. CLCN4-condition is a rare genetic condition that causes epilepsy, intellectual disability, and behavioural and movement disorders, among other symptoms. Having a loved one with this condition can be life-changing. Cure CLCN4 is here to help.

Our aim is to improve the understanding of the basic biology of CLCN4-related condition. We do this by funding research, creating and fostering a collaborative network of scientists and clinicians, and providing the scientific community with essential research tools. We also support families by providing them with up-to-date and accessible information on CLCN4, connecting them with other families to create a support network, and raising awareness among the medical community, and beyond.

Our ultimate goal is the development of effective therapies that improve the quality of life of those living with CLCN4-condition. To learn more please visit our website.

Why your support matters

Your support goes beyond just funding; it fuels hope, research, and the potential discovery of therapies for CLCN4-related condition. Every contribution, large or small, plays a critical role in our research mission. With your help, we can break new ground in understanding CLCN4, and improving the lives of those living with it.

How to support

Supporting our cause is straightforward and impactful. By clicking the ‘Donate’ button on this page, you can contribute any amount towards our mission. Your donation directly supports our ongoing research initiatives. For those looking to make a more significant impact, consider becoming a monthly supporter. Also, please share our marathon challenge with your network to help us increase our reach. Thank you!

Donation summary

Total
£9,098.05
+ £1,624.75 Gift Aid
Online
£9,098.05
Offline
£0.00
Direct
£0.00
Fundraisers
£9,098.05

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