Olivia, Talia, Juno & Anokhi's Fundraiser for Cure CLCN4
on 13 April 2024
on 13 April 2024
Meet Olivia, Talia, Juno, and Anokhi—our four young champions who are getting ready to participate in the Ibiza Kids Run 2024 tomorrow, 13th April. Their aim, however, isn't just to cross the finish line, but to raise funds for Cure CLCN4. This UK-based charity focuses on understanding CLCN4, a rare genetic condition that causes epilepsy, intellectual disability, and a spectrum of behavioural and movement disorders.
100% of the funds raised will support essential research to uncover more about the biology of this condition, with the ultimate goal of developing therapies that improve the lives of those affected. The girls are inspired by Olivia’s younger sister, Daphne, who lives with this condition. You can read more about her story here: https://cureclcn4.org/367-2/
Your contributions make a real difference. Please donate today and support our effort to create a healthier future for those living with CLCN4-condition.
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