SOFT UK Support
Organised by SOFT UKSOFT UK is a small charity and fundraising efforts help to keep us going, giving us the ability to support families, healthcare professionals, and businesses through a challenging experience.
Story
SOFT UKwas founded in 1990 byChristine Rose and Jenny Robbins. As mothers, they were unfortunate enough to discover first-hand the lack of support and information available to families affected by Pataus syndrome (Trisomy 13), Edwards syndrome (Trisomy 18) and related disorders. (See our section on About Trisomy for further info)