We are challenging you, your friends and family to keep ACTIVE in APRIL by walking, jogging, running, skating, cycling or swimming throughout the month the miles of your choice. The challenge is set for all ages and abilities, wheelchair users are welcome to join in too

Sturge Weber UK has successfully completed 30 years as a registered a charity in the UK in January 2024. We are challenging 100 people to commit to raise at least £30 on our behalf during the month of April.

Why 100 people?

The more people who complete this challenge the more awareness of the rare neurological condition which is Sturge Weber Syndrome. This syndrome affects approximately 1 in every 20,000-50,000 individuals. Sturge Weber UK relies on public donations, to enable us to assist the well being of those individuals, their families, friends, helpers and carers by providing information and support.

Kind donations made to Sturge Weber UK have a direct beneficial impact on children and adults affected by Sturge Weber Syndrome and allow us to run our Make a Difference Grant Scheme which is the main purpose of this campaign. Our Make a Difference Grant Scheme allows our members to apply for grants to support them with:

Paying for classes and activities to support wellbeing,

Buying White Goods, Sensory and outdoor toys

and help in independent living for over 21s

Our other aims for this challenge is to ;

Raise awareness of Sturge Weber Syndrome within our local communities.

Support with making new connections through engaging with the challenge.

You can register either as a sole participant or as a team where you can share your miles within the team.

You will receive a downloadable tracker sheet that can be used to keep you on track.

You can join our Active in April 2024 Facebook Group. Where you can share your updates, daily progress, and personal fundraising pages.

Download a Fitness App, these are great for tracking your steps, miles, and routes. Popular apps are Strava and MapMyWalk.

Strava can connect directly to your JustGiving fundraising page, and automatically share your maps and miles with your supporters.

Each individual participant who raises over £100 will receive a 10% discount code for the SWUK store.

Hit the orange START FUNDRAISING button to create your own personal fundraising page to share with all your supporters! We have tired to make the next stage easy for you, and have set you a target.

Each registered participant will be awarded at the end of their challenge with a congratulations certificate, along with a chance to feature on our website.

For more information contact our Fundraising team

GOOD LUCK and THANK YOU for your support!

For more information email:

support@sturgeweber.org.uk