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Our campaign is now complete. 82 supporters helped us raise £3,467.00

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Closed 31/03/2023

Super Rare 2023 for Shwachman Diamond Syndrome UK

Organised by SDSUK

Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign.

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Closed 31/03/2023

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SDSUKVerified by JustGiving
RCN 1164269
Provide access to health and educational services and resources. Forums to support our community. Develop an adult clinic with transition from paediatric to adult care. Research into the pathophysiology of SDS & treatments. A dedicated UK Patient Registry & fundraising to meet charity objectives.

Story

The Super Rare Campaign is a fundraising campaign throughout February and March where we are asking people to fundraise to help people affected by rare bone marrow conditions.

The theme for 2023 is Stroger Together - because for the first time, seven small charities are coming together to join the campaign, to help anyone diagnosed with a super rare bone marrow condition

The seven small but mighty organisations in this partnership are:

The Aplastic Anaemia Trust

CAN (Congenital Anaemia Network)

DBA UK

DC Action

Fanconi Hope

PNH Support

SDS UK

Be creative, be daring, or just be silly with your fundraising. Set yourself a challenge to complete in February and March 2023 to raise money and awareness for your chosen charity.

Raise £200 before the end of March and receive a Super Rare T-shirt.

Help SDSUK

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Donation summary

Total
£3,466.62
+ £2.50 Gift Aid
Online
£2,466.62
Offline
£0.00
Direct
£305.00
Fundraisers
£3,161.62

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