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Provide access to health and educational services and resources. Forums to support our community. Develop an adult clinic with transition from paediatric to adult care. Research into the pathophysiology of SDS & treatments. A dedicated UK Patient Registry & fundraising to meet charity objectives.
sdsuk.org
sds@sdsuk.org
SDSUK Registered charity number 1164269
"In memory of Kia Shaw. Lets keep pushing to find a cure 💜 Kia’s Dreams - See How Angels Work"
The Shaw Family donated
£1,000.00 + £250.00 Gift Aid
"Thanks for the baby carrier"
Jim donated
"From Chandag Primary School. "
Anonymous donated
£490.00 + £0.00 Gift Aid
"Donation from fundraising at Oakmere Children's Nursery, Northwich, Cheshire."
£632.00 + £0.00 Gift Aid
"You are a little star"
Betsy donated
£30.00 + £0.00 Gift Aid
"I’m so pleased the wonderful GOS were able to diagnose and help Olivia! She is beautiful. Good luck with your Golf Day. I hope you raise lots of money for this worthy cause xx"
Joanne Meredith donated
£20.00 + £5.00 Gift Aid