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Super Rare 2026

Raise £200 during February and March we’ll send you a Super Rare t-shirt. Join in with Super Rare our annual fundraising campaign and celebrate Rare Disease Day and Aplastic Anaemia Awareness Day.

Closes 31/05/2026

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Story

Support The Aplastic Anaemia Trust during February and March and help bring people affected by aplastic anaemia and other rare conditions together.

Last year 83 people affected by rare bone marrow conditions joined in with Super Rare! Will you join them in 2026?

Having a rare condition such as aplastic anemia can be lonely and people affected by it often feel isolated.

I have shrunk my world to family and mainly two friends, I am fearful of going out, and I don’t talk about my illness much to anyone.- Survey respondent

By joining in with Super Rare you have the opportunity to change that feeling of loneliness and isolation and meet other people with rare bone marrow conditions.

Super Rare, our annual fundraising campaign, brings people together who live with a rare condition, such as aplastic anaemia. It provides opportunities to meet other people who know what it’s like and understand.

All money raised in February and March will go towards the our coffee mornings, online meetups, webinars and support line.

Raise £200 for The Aplastic Anaemia Trust during February and March and we'll send you a t-shirt so you can show everyone what a Super Rare Super Hero you are!

By organising a walk with a few friends, you could ensure that someone living with a rare condition gets the opportunity to meet other people at a coffee morning, by holding a bake sale you could build friendships and support networks at our monthly online chats.

Super Rare is our opportunity to step up, reach out and connect with each other. We’ll be organising various walks and events and we would love to see some of you there! Whether you’re living with aplastic anaemia, or fundraising for one of the other rare conditions joining the campaign this year, it’s a wonderful opportunity to meet each other and share our experiences.

Join in with Super Rare our annual fundraising campaign and celebrate Rare Disease Day (28th February) and Aplastic Anaemia Awareness Day (4th March).

Donation summary

Total
£10,006.44
+ £786.25 Gift Aid
Online
£3,939.44
Offline
£6,067.00
Direct
£450.00
Fundraisers
£3,489.44

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