Maisie was a fighter. When she was just two weeks old she battled open heart surgery and sepsis and then we found out she was deaf.

We hoped that was the worst of it, but she was diagnosed with severe hypertrophic cardiomyopathy, and mitochondrial disease.

We were devastated, but decided to give her the best life we could. We had five beautiful months with her making memories with family and friends.

But then she started to become ill with infections. One day, she suddenly became very unwell and went into cardiac arrest. The doctors did their best to save her, but it wasn't to be and she died in our arms.

We would be so grateful if Maisie's life wasn't in vain, and we could raise money for the Lily Foundation in her honour. We really hope that one day, beautiful babies like Maisie are given the lives they deserve. We will spend the rest of our lives wondering who she would have become, but we are also thankful for the 6 months she gave us. We have adored being her parents, and are so proud of her.

She will live on in us forever and our love for her will never fade.