The Lily Foundation

Team Amazing Maisie are doing all they can to help find a cure for Mito

Amazing Maisie's fundraising group are determined to raise as much money as they can to support The Lily Foundation to fund research to find a cure for Mitochondrial Disease. A genetic disease that took her life in November 2018 aged just 6 months.
by 1566 supporters
RCN 1122071

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Maisie was a fighter. When she was just two weeks old she battled open heart surgery and sepsis and then we found out she was deaf.

We hoped that was the worst of it, but she was diagnosed with severe hypertrophic cardiomyopathy, and mitochondrial disease.

We were devastated, but decided to give her the best life we could. We had five beautiful months with her making memories with family and friends.

But then she started to become ill with infections. One day, she suddenly became very unwell and went into cardiac arrest. The doctors did their best to save her, but it wasn't to be and she died in our arms.

We would be so grateful if Maisie's life wasn't in vain, and we could raise money for the Lily Foundation in her honour. We really hope that one day, beautiful babies like Maisie are given the lives they deserve. We will spend the rest of our lives wondering who she would have become, but we are also thankful for the 6 months she gave us. We have adored being her parents, and are so proud of her.

She will live on in us forever and our love for her will never fade.

About the charity

The Lily Foundation

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RCN 1122071
The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Donation summary

Total raised
+ £3,258.37 Gift Aid
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