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Team Ari-Boo are joining together to help show Aria & every child like her that their lives matter

Mitochondrial Disease is a devastating diagnosis, it's progressive, life limiting & has no cure. Your fundraising will drive research, support those affected & change this story. Help us show Aria & every child like her that their lives matter.

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Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

Strength runs deep in every cell

Aria was a beam of sunshine in our lives gentle, funny, and full of curiosity. She loved music and cuddles, soft lights, and bedtime lullabies. Her giggle could melt any heart, and her favourite thing in the world was being held close enough to hear ours. She adored Bluey and Ms Rachel, clapped to every song, and looked at the world with wonder in her eyes.

She was cheeky, bright, and fiercely loving always reaching out to hold our hands, always ready with a smile that could light up the room. Everyone who met her felt it: Aria had a magic that words can’t quite capture.

In March 2025, she became suddenly unwell, and after weeks in hospital we were told she had POLG-related mitochondrial disease, a rare and devastating condition with no cure. A nurse in ICU once tied her curls into pigtails and said she looked just like Boo from Monsters, Inc. and from that day, she was our “Ari Boo.”

Aria came home and lived happily for several months, surrounded by love. She played, smiled, and showed a strength beyond her tiny years. Even as the illness progressed, she was still our same joyful, affectionate girl brave and full of light until her final breath.

Aria passed away in our arms on the 9th of August 2025, aged just 20 months.

Her love changed us forever and her light will never fade.

#ForAriBoo

Donation summary

Total
£14,489.50
+ £1,589.57 Gift Aid
Online
£12,689.50
Offline
£0.00
Direct
£2,675.00
Fundraisers
£11,814.50

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