Aubrey was born on 26th December 2018.

He was healthy, happy and thriving.

It wasn’t until he was between 9-12 months that we realised he wasn’t meeting ‘normal’ milestones for his age. We knew something wasn’t right.

After visits to the GP and eventually a paediatrician, his development wasn’t improving so they finally agreed to do some further investigations.

We then waited almost a year for an MRI scan which he finally had in April 2021.

In the meantime we were put in touch with all the services we needed to support Aubrey; speech and language, physio, OT etc.

We got Aubrey’s results from the MRI in May 2021 which showed Aubrey had a type of Mitochondrial disease.

In Nov 2021, it was confirmed through blood tests that Aubrey had Leigh syndrome.

Aubrey's Mito affected him every day in many ways. He was nonverbal, couldn’t sit unaided, crawl or walk and had global development delay. It also affected his eating, he had an unsafe swallow and in June 2022, he had a gastrostomy and a button fitted for all fluids.

In August 2024 Aubrey started having seizures and in the September he was diagnosed with epilepsy. We then started a journey of lots of ambulance calls and countless trips to hospital, different medications and specialists support.

In February 2025 we were admitted to hospital and the Drs couldn’t stop Aubrey’s seizures, we had to be transported to Manchester children’s hospital, we spent 3 weeks there in ICU, HDU and the general ward. Things seemed like they were improving and we thought we’d be taking our beautiful boy home but then things took a turn when he started to struggle with his breathing and we had to go back to ICU.

Sadly on 17th March after fighting with all his strength Aubrey gained his angel wings and will be forever 6 🤍

Aubrey was the happiest boy, he made everyone around him smile every day and we miss him dearly 💙

We really appreciate everyone who has fund raised for Aubrey so far, if you would like to raise money and much needed awareness for The Lily Foundation on behalf of Aubrey please click the start fundraising or donate link.