In Nov 2021, it was confirmed through blood tests that Aubrey had Leigh syndrome a type of mitochondrial disease.

His family were devastated to discover it was a progressive, life limiting condition with no treatment or cure.

In their search for information they found the Lily Foundation, the UK’s leading mitochondrial disease charity. They used the information on their website to educate ourselves and our friends and family as well as finding comfort in their family Facebook group.

The Lily foundation has supported them in other ways too. They went on a funded holiday to Center Parcs, have attended 2 Lily family weekends and been emotionally supported by so many Mito families we’ve been put in touch with.

They also know that the charity is directly funding research that will one day find a cure

I want to do all I can to help, so please donate if you’re able and help me raise money for Aubrey’s family and The Lily Foundation in his memory.