In Loving Memory of our beautiful Keira.

Keira was born 11th May 2011 and became the love of our lives, our whole world.

Her smile lit up the room. Blue eyes you got lost in. Hair just like Rapunzel’s.

She had her first seizure at the age of 3. Shortly after this episode which we thought was a one off, Keira started to experience them more frequently.

One of the hospital admissions in June 2015, Keira was diagnosed with Alpers-Huttenlocher Syndrome. This was the first time we had heard of Mitochondrial Disease.

After learning what Mito was, we knew the outcome would be bleak with our lives never the same again.

Her tiny body decided she could no longer fight this nasty disease and grew her angel wings on the 4th July 2016 in the arms of Daddy and Mummy. She was 5 years old.

Our hearts shattered.

Keira brought so much love & joy to all who met her.

She has an amazing sister Chloe who is making sure she is doing all she can to raise awareness and donations for her big brave sister.

Currently there is no treatment or cure for mitochondrial disease, just pain relief.

We are doing everything we can to help The Lily Foundation find a cure so eventually no other family has to endure the pain, loss and heart ache we still face after Keira’s passing.

Please do consider an event of your own in loving memory of our baby girl.