Keira Madison Elmer was and still is one of the loves of my life.

She sadly passed away at the age of 5 from a Mitochondrial disease,  Alpers Huttenlocher Syndrome. 

Keira left a massive whole in our hearts and all those who met her. She place a smile on everyone face and all fell in love with her.

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.