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Team Sophie are joining together to help beat mito and support families just like hers

Please join Team Sophie & help The Lily Foundation beat Mitochondrial Disease. Currently there is no cure, together we will change this. You can donate directly or take on your own challenge. Thank you

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Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

Our darling Sophie passed away on the 26th April 2024, aged 7. She was just a few weeks away from her 8th birthday, something which she was really looking forward to.

Sophie suffered with a mitochondrial disease, simply meaning that her 'batteries', known as mitochondria, in her cells did not work and could not provide energy. This meant that many of Sophie's organs did not work, and over a period of 3 years her health declined greatly. There is currently no treatments or cures for mitochondrial disease, which is heartbreaking for any family to hear.

Sophie was a shinning light in our family. She was an inspiration to everyone who knew her.

She lived her life to the full and made the most of every day. We are so lucky to have had her in our lives.

Donation summary

Total
£22,125.43
+ £4,007.24 Gift Aid
Online
£22,125.43
Offline
£0.00
Direct
£6,237.90
Fundraisers
£15,887.53

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