We have been through a tough year with our amazing, bright and determined son Theo. He has been diagnosed with a mitochondrial disease called PDH deficiency which is a degenerative condition and effects every cell in his body. This awful disease was responsible for him losing the majority of his motor skills earlier in the year. We spent a month in hospital feeling lost but we had our Lily family behind us, always there to give support and advice to help us find our way through and get the best care for our son. We found all this support through The Lily Foundation, they bring families together providing education, support and most importantly funding research into treatments and ultimately a cure for mitochondrial disease.
At the moment there are barely any treatments for these conditions other than a few vitamin supplements which our doctors say may or may not actually have any effect. The Lily Foundation gives us hope that someday in Theos future there may actually be something that can help him to live a normal life.
Please help us support the Lily Foundation to find a cure for Theo and all the other children and adults suffering. Theo wont give up without a fight so lets give him the best chance we can!
To help understand what mitochondrial disease is, please have a look at this link.