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Our campaign is now complete. 62 supporters helped us raise £54,284.00

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Closed 24/03/2022
Cure CLCN4

The race to cure CLCN4 starts here!

Join us on our journey to find a cure for CLCN4 by donating or fundraising today! Our goal is to raise £50,000 to create a CLCN4 disease model, which is essential for kickstarting scientific research into CLCN4. Together, we can make a difference!
£54,284
raised of £50,000 target
by 131 supporters
Donations cannot currently be made to this page
Event: 60x60 challenge, from 15 September 2021 to 15 November 2021
Closed on 24/03/2022
RCN 1190344

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Story

Cure CLCN4 was set up with the goal of advancing the much-needed basic science and translational research in CLCN4 condition. It is built on the foundation of hope and commitment, that one day there would be a cure for Daphne and children like her - Gina & Peter, founders of Cure CLCN4

The journey of finding effective treatments for CLCN4 starts with scientific research, but like a carpenter can't build without a hammer, a scientist can't do research without a model. That's why, this year, our aim is to generate the first CLCN4 disease model.

So, what is a CLCN4 disease model and why is it important?

A CLCN4 disease model is an organism or cellular model with CLCN4 condition. It helps scientists learn about:

- The function of CLCN4 in the brain.

- How a 'glitch' in the CLCN4 gene leads to symptoms such as epilepsy, and intellectual disability.

- How we might be able to treat CLCN4 to improve quality of life, health and outlook.

A CLCN4 disease model is the first step towards improving the lives of those affected by CLCN4 but we need your help to make this happen!

If you can, please donate to or fundraise for Cure CLCN4. Any size donation will make a difference in helping us reach our goal and, if we surpass our fundraising goal, we will put the extra funding towards our other scientific projects! The more we raise the faster we can go. So please share, donate and fundraise today.

If you have any questions, please contact us at info@cureclcn4.org

If you would like to donate using PayPal please use this alternative link:

https://www.paypal.com/donate/?hosted_button_id=DFUAQJX8LFB8S

About the charity

Cure CLCN4

Verified by JustGiving

RCN 1190344
We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4, a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders, and microcephaly.

Donation summary

Total raised
£54,283.36
+ £2,256.49 Gift Aid
Online donations
£14,986.36
Offline donations
£39,297.00
Direct donations
£10,091.48
Donations via fundraisers
£4,894.87

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