Positive about Down syndrome - Celebrating Down syndrome!

Positive about Down syndrome (an initiative of Down syndrome UK) is a registered charity empowering people who have Down syndrome and their families.

We have an amazing online community for our families. We know how important it is for them to have access to accurate contemporary information, so we provide our wonderful book #NobodyToldMe the truth about Down syndrome to all expectant and new parents, and literature and resources to maternity units, health professionals and educational settings.

We have online early development, speech and language, feeding and physiotherapy groups for our pre-schoolers, Makaton signing courses for new parents, grandparents and educational settings, as well as useful sessions for areas such as behaviour, wills & trusts and toilet training with our Pants4School programme. We also have experts in conditions such as nystagmus, hirschsprungs and dysphagia we dont want any of our families to feel alone on this journey. Our new early education support contains resources around choosing a nursery, starting school and EHCP support.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive!

Thank you for your support