Action for A-T was established in 2012 by parents whose daughter Evie (pictured above) was diagnosed with a rare neurological condition named Ataxia Telangiectasia (A-T). 

Since 2012, we have invested over £1.7 million in 27 A-T related research projects globally and work constantly with the best scientific minds to develop new research opportunities. The charity has its own highly qualified multi-disciplinary medical advisory and peer review panel and a grant management process which has led us to achieving a best practice award from the national Association of Medical Research Charities (AMRC).  

The charity’s mission is simple, we aim to speed up the process of identifying a cure for A-T or treatments that delay or prevent the disabling effects of this devastating childhood condition. We do this by seeking and funding high quality peer-reviewed medical research both in the UK and around the world.   

Further investment into A-T research is urgently required as there is currently no treatment or cure for the condition. 1 in 3 children with A-T will develop cancer or respiratory disorders at some stage in their short lifetimes and more than half will die before they are out of their teens. Despite these statistics, just 5% (less than £10 per child) of the UK’s annual research spend is committed to paediatric research. As a result, innovative and life changing research is going underfunded.