Living with an ultra-rare disease is an isolating and lonely experience. Christine knew this and, by founding the MPS Society, threw a lifeline of compassion to those in desperate need.

She always put the advocacy support service at the heart of what we do and the specialist knowledge she has bred throughout the charity means that we are here for you whenever you need us and for whatever you need us for. 

Raising funds to support the work of the advocacy service continues 

to be a real challenge but without this service Christine’s legacy would not exist and that is not an option!  

Whether it’s a fundraising event, a one-off or a regular donation, whatever you give in Christine’s name will make sure we are here for everyone facing the devastating news of a diagnosis of MPS, Fabry or a related disease, now and in the future.