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We provide support for people affected by CCHS by networking and advocating for families, providing CCHS education and supporting CCHS research.
CCHS UK Registered charity number 1181952
"Thank you for the CCHS UK wrist bands, we are pleased to help with this cause that is close to my heart. We will endeavour to raise more funds in the future."
Jo Langridge (CRM Trading Limited & TPS Global Logistics donated
£120.00 + £0.00 Gift Aid
"Another small donation from The Settlement Singers, Ockbrook, Derby."
£10.00 + £0.00 Gift Aid
"We raised this money through Christmas Jumper Day 2019. An employee of the business has a friend who has a daughter who suffers from the condition. We are delighted to support the charity."
Lydia Harrington donated
£350.00 + £0.00 Gift Aid
"Raised by The Settlement Singers at their annual Christmas Concert."
£630.00 + £0.00 Gift Aid
"I myself have Ondines Curse a.k.a CCHS. I am HOPING that though no cure will be found in MY lifetime, that the funding including that from myself CAN help future individuals who MAY have the condition"
David Taylor donated
£50.00 + £0.00 Gift Aid
"For cchs uk wrist bands Abie lawlor xxx"
Irene Long donated
€100.00 + €0.00 Gift Aid
Victoria Sykes has raised $1,892.69 so far
I'm We are holding a raffle for Tiger-Lilys party. for Victoria Sykes because we need more awareness of the condition cchs
Gail Devenny has raised $1,641.78 so far
I'm I for Gail Devenny because
April Towriess has raised $681.49 so far
I'm Raising awareness of CCHS and Florence's story for April Towriess because everybody needs hope!
Holly Coe has raised $619.54 so far
I'm Raising money in honour of handsome Saul Hinder for Holly Coe because Saul was supported by this group whilst with us
Debra Ray has raised $247.82 so far
I'm I am running 10K for Debra Ray because my niece, Emma, has CCHS.
Stephanie Burchell has raised $185.86 so far
I'm I am losing weight for my children for Stephanie Burchell because I want to be a better and healthier mum to them!